A hard day's schedule.

Everyday is hard. Harder than I ever thought life would or should be. This is my schedule. Sad as it seems. 

Kids are on summer vacation so I can sleep in. My husband leaves early so he is gone before I get up. 

6am-6:45. My son comes to my bed. And he lays with me til it's about 7 am. He has learned to lay quietly til 7. Then he plays games on my phone. 

7:30-8. My daughter wakes and my day begins. She turns 4 tomorrow. 

730-8 I get breakfast laid out for kids on the table and my breakfast shake in the fridge. 

8am my hopefully chill shower. It's 2 minutes of pain most times. But is short. I have been getting out of the shower with lots of pain and an incredible itch. My wrist hands and neck itch immensely. It's unreal and causes immense anxiety.  I then put on an essential oil blend my doctor has given me and very little organic coconut oil. I only really moisturize my neck and mouth area. The rest burns with moisture. Then I get dressed in my usual leggings and tee

815-830  kids are entertained with iPad and movies and then I peel. It's gross (to me). My arms peel the most. I itch and scratch and skin peels. It has gotten better but still a good amount. I will sit and drink my doctor provided detox shake with omega oils and other supplements while I catch up on the dvr. This part is usually not too bad compared to getting out of the shower. 

930 am. I cover up. Ankle to neck and g'gloves on. Y hands. For me it is best if I don't see my skin. My eczema covered skin. It's depressing to me and hard to see. So I cover it up. And it stays covers for the most part. 

10am. If we have errands to run it starts at 10. I do laundry daily and vacuum and sweep often. Imagine a sunburn and how you peel. Well this happens everyday for me. 

12 lunch and more supplements. 

Lately my hubby has been off work late and from 2-5 I have moments of feeling ok and that is when I make dinner. It's been a lot of paper plates and casseroles as anything more is hard to finish especially when I hurt and a flare coincides with making dinner. 

530-6pm. Hubby is home. Kids are fed and I can escape for a little walk in the sun or a quick escape to the backyard. 

I don't want to really see anyone right now and am dreading back to school to see moms and kids. I am home a lot. And after some bad party experiences I am done with parties. 

730. Kids are in Bed and hubby and I get an moment together. We usually escape to the backyard in the garden for a little dessert and music via our pandora. 

9pm. Time to cover up again and put pjs on along with theoge oil and very little moisturizer. 

There is so much more that happens but this is me now. It's hard and I don't see an end I sight. Hopefully soon.