Wednesday, March 26, 2014

Flare me

A flare today that has left the rest of the day achy and peel and painful. Thisn flare was about 2 hours long but still lingering with pain. My arm is more red as well. Almost 4 months and praying for healing.

Wednesday, March 19, 2014

Almost 80 days.

Face photos

Top left 1/09/14,  bottom left 2/24, right 3/17

Wrist photos left 2/24, right 3/17

Tuesday, March 18, 2014

lichenification.  The word of the week. The thick and shiny and super itchy skin I have due to scratching.  As if TSW is not enough not this.  I am trying with all my might to not scratch and the is so hard.  SO HARD,  pray for me.  I know there are followers on this page.  But any glimpse and prayer will help. 

Thursday, March 6, 2014

Day 65

An emotional roller coaster day.  I can see things getting better, I have been shedding day and night for the past 2 weeks.  Unlike some people I see I have very small pieces of skin so I pretty much feel like I have dandruff all over.

The shedding started at the end of month 2.  Right now my worst tsw spots are me left wrist, both tops of my hands, my jawline and chin.  My legs have tsw on them now too but not as red and smaller more spread out.  They also do not itch as much as the top half of my body. 

I cry a lot and just get scared I will feel this way forever as I do not see improvement. 

Yesterday was Ash Wednesday and for Lent I gave up being sad about my skin.  This will be difficult as the devil is all over that dang steroid cream that halted my life in some ways.  Please Lord heal me.  Tomorrow I go to see Dr Rappaport.  Prayers welcome.