A good day.

I am having a good day, I shed A LOT yesterday and today I do not hurt as much.  And weirdly enough I am not shedding too much either.  Right now just my left wrist is achy.  I am still pretty dry and wrinkled but I am feeling areas get smoother, parts of my back, shoulders, stomach and in the folds of my elbows.  So exciting.  I pray this is my downhill.  I know most people have a regress flare.  But I cannot prepare for that.  Today I cam going to enjoy this break.

Blessed John Paul 2

A future saint is praying for me, I am feeling good today, very dry, thick skin, and I love being in my dimly lit house as my skin does not look so bad.  I am also not as cold as my So cal home is nice and hot.  80 outside.  The shedding I am experiencing is so gross, I shed all day, except when I am flaring, when I flare I notice the shedding stops.  Almost 4 complete months in.  Yikes.  This is a hellish 4 months for sure.

This TSW is the worst thing ever I cannot wait for it to be over.

Prayers and latest images.

Praying for Grandpa Acosta and Grandpa Ramos

Randy Acosta

St Therese

Prayers

Today I am praying for and offering up my pain to Nonno Michele DeBellis.

I also am on day 3 of taking showers, warm showers 2 min long, in the am and pm.  Wow!  It has really helped the areas that are healing, my back, legs, and stomach, my neck, shoulders and arms still itch but I am loving not stinging all day.

I also got to enjoy my sons Easter party today and with only a few limitations to my movement I did awesome.  Praise God.  Pics to follow.

Prayers

Praying for my cousin Gina who passed from cancer, Gina pray for us.  I love you.

Offering it up

Everyday from here on I will offer up my pain and suffering for someone. Today the first day I prayed for the baby my little sister lost last year to miscarriage. Baby Jude. I prayed for and with the baby. Lord hear my prayer.

Shower or bath?

I have been taking 2 baths a day about 20 to 30 minutes each, this is very hard for a mom to do.  I am in the bath while kids watch TV, fight play and do everything else.  My little ones are 5 and 2.  Yeah, that is not ideal.  So I am thinking about experimenting with showers.   Pray for me.

Two good days

I am now in month 4 of TSW and having two-knock-on-wood good days.  Please Lord Jesus let the healing continue.

I am still cold as the weather has cooled here in So cal.  I am sleeping better and today and yesterday did not need Benadryl during the day.  My arms are tight, thick and dry but not too bad.  MY neck is also the other thickest part of my body.  But this time last week I was flaring could not lie down as my skin burned with any pressure and I itched like crazy.  I still itch but it is not the burning going crazy kind. 

Thank you Mother Mary