I have had two terrible Sunday's in a row. Yesterday I woke to tons of shedding skin on my shoulders and neck area. This is the first time for those areas. I wake every day to my arms and neck shedding and flaking. Think of the worst sunburn you hav had but full body and everyday bit creates immense anxiety for me. But rather than getting better it seems to dart the same. That should have tipped me off to the flare to come but I ignored it and on Father's Day I had terrible pain and flares after 1 pm. Flares where the pain was so Bad I could not talk. I am very zombie like when they come. I try to go about my day but I can't. I am in pain. Anxious. Irritable. Depressed you name it.
I made my hubby s cereal breakfast, his chide. And then took my shower. Upon getting out the Tsw skin felt so and crusty I badly could breathe. It came off in sheets and after I m felt raw and tired. But we pressed on and after lunch we took the kids to see 'finding dory' where the flare started. Luckily the movie theater was cool after the flares began. And did not end until bedtime.
I hate this life. I want my skin back. I hate who I am with pain. I miss being happy and having energy. Prayers cause that all I have left.
Praying for you as always.
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