Thursday, November 26, 2015

Thanksgiving and feeling a bit thankful

Left pics were taken in June. 

Right pics were today. 

Thankful even if I am not healed. 








Friday, November 13, 2015

Pampering.

Right now I am getting my first pedicure in a year and a half. My feet never flared that bad but I have avoided unecessary public outings as much as possible. I hope a manicure can happen soon. 

Last nights sleep was very broken as I had a lot of nerve pain but did not peel too bad today after my shower. Slowly but surely this has to go. 


Tuesday, November 10, 2015

I survived.

DThis weekend my little family and I took out our new trailer to break her in. I started having a bad flare on Friday night and it is continuing today. Below are the pics of my hands and wrists. I am getting better but I am still in so much pain. 








Sunday, October 25, 2015

Recording pain.

The last few days. The weekend. I was in so much pain. Saturday hurt but today was terrible. 

I flared, from painful to semi excruciating about 6 times today. From tired and achy skin to stinging and on edge burning skin. 

I cannot wait for this to be over. 

Friday, October 23, 2015

Thinking.

I often wonder where my life would be if this had never happened. I am in and out of the stages of grief. A balancing act that I often fall flat on my face, that is life right now. Would we have had another baby?  Would I be working?  I cry often hoping and seeking this to end. Soon. Eventually. It must happen.

The last few days have brought on bright red and burning flares. 



Thursday, October 15, 2015

The best I have looked in a year.

OMonth 22- while still painful but I can see healing. The photos below I took today. This is best I have looke since this time last year. Please let this continue. 

















Thursday, October 8, 2015

Rant. Sadness.

I am in 4 private Facebook groups related to Tsw. And to see people healing is uplifting but to have to wake up covered in 'eczema' makes me sad. I really want to be healed. I have hope but at the same time don't know what to do. I am getting better but every night, and sometimes throughout the day, I get bright red only to know I will peel over my entire body again the next morning. Ugh. Sad. The discomfort and pain are indescribable but there is nothing I can do.