Tuesday, April 29, 2014

A good day.

I am having a good day, I shed A LOT yesterday and today I do not hurt as much.  And weirdly enough I am not shedding too much either.  Right now just my left wrist is achy.  I am still pretty dry and wrinkled but I am feeling areas get smoother, parts of my back, shoulders, stomach and in the folds of my elbows.  So exciting.  I pray this is my downhill.  I know most people have a regress flare.  But I cannot prepare for that.  Today I cam going to enjoy this break.

Monday, April 21, 2014

Blessed John Paul 2

A future saint is praying for me, I am feeling good today, very dry, thick skin, and I love being in my dimly lit house as my skin does not look so bad.  I am also not as cold as my So cal home is nice and hot.  80 outside.  The shedding I am experiencing is so gross, I shed all day, except when I am flaring, when I flare I notice the shedding stops.  Almost 4 complete months in.  Yikes.  This is a hellish 4 months for sure.

This TSW is the worst thing ever I cannot wait for it to be over.

Saturday, April 19, 2014

Wednesday, April 16, 2014

Prayers

Today I am praying for and offering up my pain to Nonno Michele DeBellis.

I also am on day 3 of taking showers, warm showers 2 min long, in the am and pm.  Wow!  It has really helped the areas that are healing, my back, legs, and stomach, my neck, shoulders and arms still itch but I am loving not stinging all day.

I also got to enjoy my sons Easter party today and with only a few limitations to my movement I did awesome.  Praise God.  Pics to follow.

Tuesday, April 15, 2014

Prayers

Praying for my cousin Gina who passed from cancer, Gina pray for us.  I love you.

Monday, April 14, 2014

Offering it up

Everyday from here on I will offer up my pain and suffering for someone. Today the first day I prayed for the baby my little sister lost last year to miscarriage. Baby Jude. I prayed for and with the baby. Lord hear my prayer.

Monday, April 7, 2014

Shower or bath?

I have been taking 2 baths a day about 20 to 30 minutes each, this is very hard for a mom to do.  I am in the bath while kids watch TV, fight play and do everything else.  My little ones are 5 and 2.  Yeah, that is not ideal.  So I am thinking about experimenting with showers.   Pray for me.