New meds.

I started an immuno suppressant drug this last Friday. I am 33 months in and since the Fourth of July the red skin had spread and gotten so terrible. I would wake up with a crust of skin on my arms neck back and legs that moving took every ounce of me. I made the appointment with dr rapaport and so grateful I did.

Saturday was my sister in loves bridal shower and the dress I had made by my friend was made before the fourth flare. I was heartbroken and so scared to show my skin. But the meds took the edge off my heart and the daily pain that has become normal. I felt like a shell Thursday and Friday felt renewed. It was the first night I had a dream my skin was normal. 

You can't tell but I am head to ankle in what is crappy eczema skin. 

I have taken the meds for 3 full days and see relief. Immuno suppressants are scary and the reason I did not take them was because my husband saw them as a cop out. But I could not take the pain l, depression and all together lack of life anymore. Please pray for me. I need a fan enjoying this slow relief. I am hoping by my sisters wedding to have mostly clear skin. 

Please end. End for good.

Best. Hopefully.

I woke up feeling terrible. So dry. Peeling. It was unreal. Then I showered and i peeled so much skin in the shower. It was gross but felt so good after. Then after my recovery from the shower I felt OK. Then it continued. I peeled but not like had in past days. I am sitting outside in a beautiful setting and my skin looks and feels the best it has since before the Fourth of July. Please lord let this bad flare I have been in let up. 

Right and left hand. Still looks covered but feels so much better. 

Crying.

Who else tears up watching their kids swim?  Me. I love swimming so much and for three years I physically have not been able to. I am so sad over this. 

 

Month 30. Going. Swimming. Hoping to heal.

Here I am month 30 and just as areas start to heal I get a new patch on my middle finger. But... This week I have done far more than ever in the least 3 years. Late last week my son decided to go too far in the pool and fully clothed I had to jump in and save him. I was ok after. Itchy but ok. We also moved two weeks ago and are starting a new family journey. We sold our home in March and lived with my parents to help me. In the end it was harder on our family so last week we 'moved' into our fifth wheel trailer and while we await escrow we are on a long family vacation. We are full time RV living and have been having such a great time. Some things are harder like limiting my laundry and being 100% in charge. But I have EVERY meal in the last two weeks. 

Our escrow is for a 16 acre ranch. A dream of my husband and I. Unfortunately I am not healed I used ts for 18 years and still struggle daily. But with the help of facebook Tsw groups and knowing I will heal is helping me. 

Soon very soon I hope. 

Wearing shorts and no long sleeves

Unfortunately I hope to post better images of my skin. Only good thing is it has looked worse. But man am I ready for this to be gone. I never post pics of my neck or face but they are covered and flaring too. 

Fourth flare

Since Monday, the fourth, I have been having really bad flares. My son was In Our local parade and it started and I wrote it off. Tsw sucks. Pain. Peeling skin. Burning skin. Please end. Not only that but last week my hubby broke his leg I am now taking care of myself my husband and two kids all day. Tired. 

These pics are from yesterday before my shower. 

Feeling sad.