Flares.

I have been in a flare rut lately. Yesterday I had 5. So far today 2. I have also been getting really bad headaches for the third day in a row. But I have been sleeping better and feeling the best I have in a long time. Shower recovery still is hard but after I have a few moments where I feel ok followed by a flare. 

Below are a few pics 

A first since October.

Today was the first time since October that I have gone all day with arm skin exposed. I also wore a bra all day today. Thank God for this break. I needed it. I also took my kids to park in this so cal heat. This was a good day. 

This was my right arm. Left Tsw 16 months ( a year ago April). Right taken. Yesterday. Yes!!!!!

One off one day on

II had a bad flare starting Monday Night when I sleep at most 2 hours. Then since then it's been off and on. Bad flare Tuesday. Ok Wednesday. Bad flare Thursday. Ok Friday. Geez I am tired and just want soft skin again. 

Also my peel after my showers has been immense. My skin feels so unstable. 

Mid flare and so red. 

Worst spots are my forehead. Right temple. Jawline and neck. And chest and shoulders and arms.

I also have been back to not being able to wear bra straps. The pressure on my Skin when I wear them is so painful. 

Energy code

Last Saturday I went to a new person to help me heal. She works with my doctor and uses energy code. It's a method similar to reiki, another form of healing, the bodies energy. The woman's name was Keri. She was very nice and through my body was able to read my bodies energy and stored energy in my body. She released that energy with magnets. She knew what my body was holding and the pain I was experiencing and down to the year and age it started. I started taking topical steroids in 1996 at about 12-14 years is when I started to decline and when I know I started to get addicted to steroids. She even said a couple days later I may feel sick and emotional and I am. I am sitting here watching my older sister so cross fit with Eminem rap on and I feel like crying. This stuff is not fake it's real. And hopefully soon my healing will be real too. 

This is my sister. She is a beast and is also helping my nephew heal from Tsw. 

March 2015 vs March 2016

March 2015 

March 2016

My left wrist. I cry often thinking I am not healing. But that is so far from the truth. I am. Slowly. 

March 2015

Left elbow. Thick skin. It hurt so bad to straighten my elbow for this pic. 

March 2016. Left elbow. It hurt a little to take this one. 

Slowly

I have had a pretty rollercoaster month but this weekend was the best weekend pain wise I have had since the new year. I even felt good enough on Sunday to skip my morning shower and head out on a drive to Agua Dulce (gorgeous ranch town north of Magic Mountain) and saw some beautiful California rural land. Loved it. I feel stronger mentally and have been able to accomplish so much. 

Prayers still accepted as I would say 60-70 of my body is still affected but it is solely feeling calmer. 

Check out that healed area on my hand!!!

Agua Dulce

My angels on a hike

Month 26

Last week we were on vacation...

I had a terrible two hour long burning flare it wiped me out on the Monday we were set to come home. My entire body, but mostly my arms and wrists, were burning and itching as if on fire. It made me very sad and exhausted me. My hubby let me rest under a gorgeous oak tree and I woke up as if run over by a truck. 😕

I want to heal.