Day after a flare

I made it through another hard day. Yesterday's flare caused today's peel. 😕

These are of my left arm. The rest of my body from th waist up was about the same. My face fully peeled in small pieces all over. 

Month 25

One day I will get better... Today is not that day. 

I had a bad flare that started mid morning climaxed at 3-4 and then died down after 5:30 pm. 

Photos from Jan 8th

I had a terrible New Years flare. I was in so much pain and it really affected me. When I look back on memories of a bad flare my mind puts a black edge kind of cloudy on the memory. It's painful to even remember. But I did it. We were camping and I hated to hurt so bad. I maybe slept 3 hrs each night. Just pain and cold overtook me. 

As soon as we got home I slept great and there flare calmed. I attribute this to my soft water at home and that my house is warmer than my trailer and also that the flare calmed as I peeled so much in the days following. 

Below are photos I took while on a target run with my kids. 

On a side note we also started our official first week homeschooling our kids. My son is seven and daughter is 4. I have wanted to this since my so was born but my hubby not sure and my health overtook the decision. Now my energy is now used focusing on my kids and not on getting them ready and to and from school. 

I hope this helps in my recovery. 

Day one. 

Another flare

I flare everyday but this was got me really sad. 

My second Tsw Christmas. ☹️

My left hand.

This hand used to be solid Tsw eczema. It's opening up. Please continue. 

My flares a were terrible Friday afternoon and Saturday afternoon but calmed down yesterday and today. Tsw is all about trying to stay as comfortable as you can which is hard when all you want is relief and all you get are more flares. 

Last week I had such a terrible flare.   In a weeks time I had a great Thanksgiving Saturday with my family and then spiraled downward fast.  It lasted a week.  A terrible week of pain.  I managed to live, which in the moment was so impossible.  December 1st I started month 24 and the flare calmed down on the 3rd.  I was so emotional and tired, I cried a lot.  But then felt better.  Today I was able to get in the shower, peel and get dressed in about 35-40 minutes.  This is awesome.  I still flare quite bad on my hands and neck.  But I can move my legs without wincing.  Last week the tsw skin on my inner thighs felt like it would crack and split every time I extended my legs or sat down.

I really want to get better, it will happen and I see healing but i am tired.  If you wake up pain free please don't take it for granted.  My heart aches for the thousands of us living like this.  Hopefully my third year of tsw will be only healing.