missing in action...

I promise my phone hates blogger and I may start a new blog if it keeps up.  I am doing ok right now.  I have had small flares daily but nothing compared to before.  I have been having to take Benadryl almost every day again, it helps me sleep.  The itch at night is not painful or constant like before but annoying.

Blogging is hard for me.  Writing about myself is hard for me so I ay have to come up with another way to documents cause I really don't like to talk about myself, let alone type it.

My blogger hates me. This is me now. So happy. Still on cyclosporine 100 mg. Here's hoping. 

About me.

Been Married -- yes

Been divorced --no

Skipped school -- yes

Watched someone give birth -yes

Watched someone die - yes

Been to Canada --no

Ridden in an ambulance --yes

Been to Hawai --yes

Been to Europe -- yes

Been to Las Vegas --yes

Been to Washington DC --no

Been to Nashville -- no

Visited Florida -- no

Visited Mexico --yes

Seen the Grand Canyon -- yes

Flown in a helicopter-- no

Been on a cruise -- no

Served on a jury -- no

Been in a movie -- no

Danced in the rain -- yes

Been to Los Angeles -- yes

Laughed so much you cried -- yes

Laughed so hard you peed -- no

Caught a snowflake on your tongue --yes

Had children -- yes 

Had a pet(s) -- yes

Been sledding on big hill -- yes

Been downhill skiing --no

Been water skiing -- yes

Rode on a motorcycle -- no

Traveled to all 50 states -- no

Jumped out of a plane -- no

Been to a drive-in movie -- yes

Rode a camel -- no

Rode a Horse -- yes

Been on TV -- no

Been in the newspaper-- yes

Stayed in the Hospital -- yes

Donated blood -- no

Gotten a piercing --yes

Gotten a tattoo -- no

Driven a stick Shift -- yes

Been scuba diving -- no

Been snorkeling -- no

Rode in the back of a police car -- yes

Got a speeding ticket -- no

Broken a bone -- yes

Gotten stitches --yes

Traveled Alone -- yes

Today.

Left home at 8:45am. Kids optometrist appt at 10:30am. Meet my mom and sister for lunch at noon. Walk IKEA at 1:00pm. Chiropractor appt at 3:00pm. Meet our friends at 5:00pm. Get home at 11:00pm. This day is made possible by my new meds. For three years I could have never completed this day. Thank you Jesus. #dreamingofhealing

New meds.

I started an immuno suppressant drug this last Friday. I am 33 months in and since the Fourth of July the red skin had spread and gotten so terrible. I would wake up with a crust of skin on my arms neck back and legs that moving took every ounce of me. I made the appointment with dr rapaport and so grateful I did.

Saturday was my sister in loves bridal shower and the dress I had made by my friend was made before the fourth flare. I was heartbroken and so scared to show my skin. But the meds took the edge off my heart and the daily pain that has become normal. I felt like a shell Thursday and Friday felt renewed. It was the first night I had a dream my skin was normal. 

You can't tell but I am head to ankle in what is crappy eczema skin. 

I have taken the meds for 3 full days and see relief. Immuno suppressants are scary and the reason I did not take them was because my husband saw them as a cop out. But I could not take the pain l, depression and all together lack of life anymore. Please pray for me. I need a fan enjoying this slow relief. I am hoping by my sisters wedding to have mostly clear skin. 

Please end. End for good.

Best. Hopefully.

I woke up feeling terrible. So dry. Peeling. It was unreal. Then I showered and i peeled so much skin in the shower. It was gross but felt so good after. Then after my recovery from the shower I felt OK. Then it continued. I peeled but not like had in past days. I am sitting outside in a beautiful setting and my skin looks and feels the best it has since before the Fourth of July. Please lord let this bad flare I have been in let up. 

Right and left hand. Still looks covered but feels so much better.